Summary of “In My Chronic Illness, I Found a Deeper Meaning”

My lupus diagnosis would later be taken away and then given back countless times as suited the needs of health insurance and disability insurance companies to sort and manage me and decide how much care I was entitled to.
The needs of my body were virtually irrelevant in this process as my diagnosis become a monetized affair where I had to jump through increasingly difficult hoops to “Prove” it.
In a political moment where health care is treated as a luxury and hurricane victims are blamed for their own disasters, an ethic of personal responsibility reigns.
I stopped trying to “Overcome” my body and started living a present-tense life in chronic illness.
With great difficulty, I learned how to accept care.
A child of neglectful and absent parents, I had been fiercely independent for most of my life; now, as fatigue gripped my body, I needed help preparing food, showering, doing laundry, managing my medications.
We are born needing care and die needing care, and I am no exception.
Slowly, I found a deeper value in relationship beyond reciprocity: an unconditional love and care based in justice, and a belief that all humans deserve relationship, regardless of whether we can offer anything measurable back.

The orginal article.